disability means
curtailing things you love
it means living with
fear of getting worse
you can count on
losing touch with friends
because they don’t
understand: is it catchy?
disability puts
walls up between people
because shared interests
may no longer be possible
disability may not
be seen, but it is felt
and the crushing
weight of it on your day
may make you want to
sit around in p.j.’s
and not do anything
except nap and use the john
disability holds you
down, even when you want
to get up and clean
the house, play in the snow,
go for a hike, ride
a bike, visit who you like,
sometimes you feel
frozen in space and time
no explanation will
ever free you
but disability does
not make you less human
it doesn’t take away
your right to speak
you are still
entitled to your feelings
you still have
likes, dislikes, an identity,
and you are not your
disability
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